A languid feeling persists,
yet I find the strength to arise from the couch.

Pain in places often unseen,
yet you wouldn’t know that I feel this way.

Longing to share my suffering,
yet I don’t want to burden others with illness.

Pretending I can have it all,
yet realising that often it is a struggle to live.

Taking all of the pain and suffering,
yet knowing that there is help along the way.

Something Extra

I had deroofing surgery in my left armpit on Friday, so everything has been up in the air.
Hidradenitis Suppurativa has been a part of my life since I was around 11, yet I didn’t get a proper diagnosis until my mid-30s.
I’m so pleased I found St Vincent’s Hospital Dermatology Unit in Melbourne; they’ve changed my life.
I’m sure I will find inspiration in some random happening or photograph, and I will be back to posting regularly soon.

My Dying Leaves

My dying leaves
the Autumn of my life
the Winter of what might have been

Maroon leaves crack and crumble in my hands,
dead before I touch them

I long for the place I cannot find,
the leaves know of not of this place I cannot find
Neither do I

Was it from the past or the future?
I cannot find it

The curtain may close before I get the chance